Wow, I have found a forum for people who suffer from tinnitus, and I left a post about pulsatile tinnitus. I got many repsonses and I thought I'd post a few of them on here. People really can't understand what this condition is like, but reading how people live with it might help people sympathise. It wsa good for me to see that I'm not alone....
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I have been suffering from pulsatile tinnitus for about 9 months - left ear only. I used to mainly hear it at night lying in a certain position. I now in the past month have started to hear it more during the day. Often it is made worse by certain head movements and sounds like a whooshing noise when I bend over. I have been to my GP 3 times and also went to casualty as I thought I was having a heart attack. Casualty carried out ECG and listened to carotid arteries and said everything was normal. GP listened to carotid arteries, said everything was normaal, they also took my blood pressure which was slighly below normal. GP's have made me feel foolish, but I am concerned about what is causing this noise. I had to insist on a referral to ENT, which I am having to pay for privately. My ENT appointment is on Tuesday 9/10/07 - what should I expect from this. What are the best questions to ask.Grateful for some advice
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I have pulsatile Tinnitus it is more a problem at night it keeps awake and I have trouble sleeping. During the day I feel dizzy all the time and I have to make sure somebody is with me. I have stopped going out as at night time is worse and if I do the noises stay with me and they are still there in the morning. I feel sometimes that nobody knows how you feel. I think that GP`s have no understanding of the condition. I would like any advice or help from anyone as I am at my wits end and dont know how to carry on with a normal life.
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Yes I unfortunatley suffer from pulsatile tinnitus. Last year I thought I was going nuts with this constant thumping in my head and the doctor told me it was migrane. I phoned my ENT and made an appointment last November and I was told I had pulsatile tinnitus but there is nothing you can do. I was really struggling (still am) and was given an appointment in July. II was taking panic attacks with it but I joined this forum about a month ago and have taken great comfort from it. I to don't know anyone with the pulsatile tinnitus and felt I was totally alone. I have started talking about it more and my work are very supportive.
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I got through another day and after having had a decent night's sleep, I had a few hours wher I was so engaged in what was going on around me that I almost forgot about it. I took a walk and listened around the T to hear the birds and all the little delicious sounds I hold so dear. It was a precious moment.
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Yes I also get the neck pain and back of my head. Sometimes I feel as if my head is going to burst. I often feel dizzy and sick particulary when it is bad and need to just sit for a while until it passes. It has affected my quality of life, I even panic sometimes when I have to go out alone but now that I know what it is I feel slightly stronger in order to manage it
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Pulsatile tinnitus is a big problem for me. There are many nights the sounds are so loud, and my head is so painful, that I feel like putting a bullet into my ear, or scraping my ear drums out with a screwdriver.
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